“She Just Doesn’t Want to Work,” My Mother Told Her Nursing Staff About My Condition. I Silently Slid My Medical File Across the Table to Her Chief of Medicine. Her Next Shift Was Her Last.

and no new organ involvement, which was the best category of news available and which I received with the specific gratitude of someone who has learned not to take stability for granted. My medication requires monitoring, my sleep requires protection, my schedule requires a level of intentional management that healthy people do not have to think about.continue reading …